Today Is World Hemophilia Day

Source:  Today Is World Hemophilia Day    Tag:  images of hemophilia
My Son William, age 3, has Severe Hemophilia.  Today I celebrate his life.

I want to share a website called   www.MyGirlsBlood.org . If you go to anthology you can read stories written by women from all over the world with bleeding disorders. Some of these stories really put things into perspective for me. I don't ever want to fall into a victim role. We are extremely fortunate to live in the US where our children can live normal lives. Some of these women and others like them are just lucky to survive. They don't have SSDI or Make a Wish. In many cases they don't even have Factor. The goal of some of these women are to just stop bleeding long enough to finish school so they can provide for their brothers and sisters, mother and fathers. For me, World Hemophilia Day not only means awareness, but also means celebration. In a few hours I will be celebrating my little boy's life by watching him ride his big boy bike at the park. I don't need Make a Wish. My wish has already been granted .