Fibrous Dysplasia

Source:  Fibrous Dysplasia    Tag:  fibrous dysplasia symptoms
Most of this will be what I can copy and paste from medical websites.  They can always explain it better than I can.

From MayoClinic:

Fibrous dysplasia is a bone disorder in which scar-like (fibrous) tissue develops in place of normal bone. As the bone grows, the softer, fibrous tissue expands, weakening the bone. Fibrous dysplasia can cause the affected bone to deform and become susceptible to fracture.
Most people with fibrous dysplasia are diagnosed during adolescence or early adulthood. Mild cases usually cause no signs or symptoms. More-serious cases of fibrous dysplasia may result in bone pain and deformity.
The basic cause of fibrous dysplasia is unknown. There's no cure for fibrous dysplasia. Treatment focuses on relieving signs and symptoms.
Fibrous dysplasia can affect any bone in your body. Most people with the disorder have only one affected bone — a form called monostotic fibrous dysplasia — and develop no signs or symptoms. When the condition affects more than one bone, it's known as polyostotic fibrous dysplasia. Bones most commonly affected are:
  • Thighbone (femur)
  • Shinbone (tibia)
  • Pelvic bones
  • Ribs
  • Skull
  • Facial bones
  • Upper arm bone (humerus)
Fibrous dysplasia may cause few or no signs and symptoms, particularly if the condition is mild. Signs and symptoms typically develop during the teens or 20s. If you have the polyostotic form, you're more likely to develop signs and symptoms, usually by age 10. More severe fibrous dysplasia may cause:
  • Bone pain
  • Difficulty walking
  • Bone deformities
  • Fractures
In rare cases, fibrous dysplasia may be associated with abnormalities in the hormone-producing glands of your endocrine system — such as your pituitary gland — that regulate various functions throughout your body.
You develop fibrous dysplasia before birth, and its development has been linked with a gene mutation that affects the cells that produce bone. No one knows what causes the mutation, but it isn't inherited from your parents, and you can't pass it on to your children.
Bones are living tissue, so even after you stop growing, your bones are in a continuous process of renewal known as remodeling. In the process, certain bone cells (osteoclasts) tear down (resorb) bone, while other cells (osteoblasts) rebuild bone. Fibrous dysplasia disrupts the process, causing old bone to break down faster and replacing normal bone tissue with softer, fibrous tissue.
Besides bone fractures, severe fibrous dysplasia can lead to:
  • Bone deformity. The weakened area of an affected bone can cause the bone to bend (bow). If your spine is affected, you can develop scoliosis, an abnormal curving of the spine.
  • Vision and hearing loss. The nerves to your eyes and ears may be surrounded by affected bone. Severe deformity of facial bones can lead to loss of vision and hearing, but it's a rare complication.
  • Arthritis. If leg and pelvic bones are deformed, arthritis may form in the joints of those bones.
  • Cancer. Rarely, an affected area of bone can become cancerous. This rare complication usually only affects people who have had prior radiation therapy.
I guess I'm just amazed that the years I played soccer I never broke a bone.  I came close; through my shin guard, a girl kicked me so hard that I bruised and swelled up.  My uncle thought I might have chipped the bone or something; it took forever to heal. 

I was diagnosed with fibrous dysplasia in September 2010 after going to the ER with chest pains.  They found two lesions on my ribs; one on my left second rib (hence, feeling like I was having a heart attack) and one lower on the right side (these pop and often feel like they're going to snap in half).  Since then, I've been diagnosed with tendonitis in my right hand and shoulder and my left shoulder is beginning to bother me.  Not sure if that's connected or not.

I can't walk for too long or my hip will start hurting.  I get migraines a lot that start in my neck.  I have TMJ problems; my jaw constantly pops.  I'm not sure how FD will affect me in the future with osteoporosis and such, but I guess we shall see.